Contact Us

If you or your child has FXS and are interested in participating in FORWARD, please see the Clinics section for contact information of participating clinics. All FORWARD participants must be enrolled through a clinic.

If you have questions about visiting a fragile X clinic, please contact Jayne Dixon Weber, the Director of Education & Support, at

If you would like to learn more about fragile X syndrome, please visit the National Fragile X Foundation at

For more information about┬áCDC’s work on fragile X visit

If you are a fragile X clinic interested in joining the efforts of FORWARD, please contact the FORWARD National Coordinator, Amie Milunovich at