Collaborating Clinics

There are currently 24 FORWARD collaborating Fragile X clinics. If you or your child has FXS and are interested in participating in FORWARD, please contact a clinic near you for more information about how you can participate in this important project and help us discover more about FXS.

Arizona Phoenix Children’s Hospital
1919 E Thomas Rd
Ambulatory Building
Phoenix, Arizona 85016
Email: FXDS@phoenixchildrens.com
Phone: 602-933-0635
California Long Beach Memorial Miller Children’s and Women’s Hospital Long Beach
2651 Elm Ave #205
Long Beach, California 90806
Email: messmore@uci.edu
Phone: 562-728-5035
California UC Davis Health System
2525 50th Street Room 2282
Sacramento, California 95817
Phone: 800-482-3284
California Stanford University
401 Quarry Rd.
Stanford, California 94305-5795
Email: reikor@stanford.edu
Phone: 650-498-4538
Colorado Children’s Hospital Colorado
13123 East 16th Ave B140
Aurora, Colorado 80045
Email: susan.howell@childrenscolorado.org
Phone: 720-777-8361
DC Children’s National Medical Center
111 Michigan Avenue NW
Washington, DC 20010
Email: mmeltzer@childrensnational.org
Phone: 202-476-6249
Florida Mailman Center for Child Development
1051 NW 10th Ave, BRB-336 (M-860)
Miami, Florida 33136
Email: rpressman@med.miami.edu
Phone: 305-243-6074
Georgia Emory University School of Medicine
1365 Clifton Road Building B, Suite 2200
Atlanta, GA 30322
Email: hailey.campbell@emory.edu
Phone: 404-778-1363
Illinois Rush University Medical Center
1725 West Harrison Street Suite 718
Chicago, Illinois 60612
Email: dorothy_malecki@rush.edu
Phone: 312-942-4036
Iowa University of Iowa Children’s Hospital
100 Hawkins Drive
Iowa City, Iowa 52242
Email: jennifer-luria@uiowa.edu
Phone: 319-384-6208
Kansas University of Kansas Medical Center
3901 Rainbow Blvd Mail Stop 4003
Kansas City, Kansas 66160
Email: pyoung@kumc.edu
Phone: 913-588-5741
Kentucky Weisskopf Evaluation Center
571 South Floyd Street Suite 100
Louisville, Kentucky 40202-3828
Email: debbie.lorence@louisville.edu
Phone: 502-588-0900
Maryland Kennedy Krieger Institute
716 N. Broadway
Baltimore, Maryland 21205
Email: fragilex@kennedykrieger.org
Phone: 443-923-7619
Massachusetts Boston Children’s Hospital
300 Longwood Ave, Genetics Dept Fegan 4
Boston, Massachusetts 2115
Email: sharyn.lincoln@childrens.harvard.edu
Phone: 617-355-4688
Michigan University of Michigan Hospitals and Clinics
1500 E Medical Center Drive
Ann Arbor, Michigan 48109-0718
Email: jjacher@med.umich.edu
Phone: 734-615-8328
Minnesota University of Minnesota
717 Delaware Street SE Suite 371
Minneapolis, Minnesota 55455
Email: drambeck@umphysicians.umn.edu
Phone: 612-624-0171
New York New York State Institute for Basic Research in Developmental Disabilities
1050 Forest Hill Road
Staten Island, New York 10314
Email: divya.x.moorthy@opwdd.ny.gov
Phone: 718-494-5369
North Carolina Duke University Medical Center
Box DUMC 3364
3000 Erwin Road
Durham, North Carolina 27705
Email: stephanie.thera@duke.edu
Phone: 919-668-6472
Ohio Cincinnati Fragile X Research and Treatment Center
3333 Burnet Avenue
MLC 4002
Cincinnati, Ohio 45229
Email: hilary.meyer@cchmc.org
Phone: 513-636-4134
Ohio Cleveland Clinic Foundation
2801 Martin Luther King Jr Drive
Cleveland, Ohio 44104
Email: antczac2@ccf.org
Phone: 216-448-6119
Pennsylvania Elwyn Fragile X Center
111 Elwyn Road
Elwyn, Pennsylvania 19063
Email: Marcy_Schuster@elwyn.org
Phone: 610-891-2349
Pennsylvania Geisinger Fragile X Center
120 Hamm Drive Suite 2A
Lewisburg, Pennsylvania 17837
Email: bahaasgivler@geisinger.edu
Phone: 570-522-6287
Pennsylvania Children’s Hospital of Pittsburgh of UPMC
Oakland Medical Building
3420 Fifth Avenue
Pittsburgh, Pennsylvania 15213
Email: gale.jones8@chp.edu
Phone: 412-692-6538
Texas Children’s Health and UT Southwestern Medical School
6363 Forest Park Road Suite BL5.230
Dallas, Texas 75235
Email: maryann.morris@childrens.com
Phone: 214-648-5866